Apparently, fibromyalgia and gluten sensitivity have a lot of similar features, according to Deirdre Rawlings, writing for FOODS FOR FIBROMYALGIA.

Physical symptoms associated with gluten intolerance and celiac disease include the following:

  • Abdominal cramping / bloating
  • Abdominal distention
  • Appetite increased (to the point of craving)
  • Back pain
  • Constipation
  • Dehydration
  • Decreased ability to clot blood
  • Diarrhea
  • Dry skin
  • Edema
  • Electrolyte depletion
  • Energy loss
  • Fatigue
  • Gas / flatulence
  • Mouth sores or cracks in the corners
  • Muscle cramping (especially in the hands and legs)
  • Night blindness
  • Weakness and lethargy

Emotional states associated with gluten intolerance and celiac disease are:

  • Brain fog
  • Depression
  • Difficulty concentrating
  • Disinterested in normal activities
  • Irritable
  • Mood changes

How many of these sound like a person with fibromyalgia, depression, mild anxiety, and irritable bowel? Exactly. How about if I just list the symptoms I don’t have?

  • _____?

Yeah, I’ve got it all. And my weekend (Friday-Sunday) was very, very gluten rich and surprisingly increasingly painful. So I might have a sensitivity, if not an allergy (I also sometimes break out in unexplained rashes, which I currently have), and I ought to ask my doctor to do tests to determine whether this is possible. Until then, I should eat a low-carb diet.

But gluten is sooooo yummy. My favorite foods are ice cream, bread, chocolate, and pasta.

So I could change my diet and possibly turn everything around (and also lose a lot of weight without my favorite foods to tempt me) but lose the comfort of those favorite foods except on rare occasion.

Or I could go on as if this weren’t a possibility.

Yeah, yeah, I know. I made an appointment for next Wednesday (3/10) with my rheumatologist and I will definitely be bringing this up.

Luckily, my “adoptive” grandmother (my husband’s maternal grandmother)’s husband has gluten intolerance and he eats a gluten-free diet, so she could have some great suggestions, and there are many cookbooks and diet books out there.

I don’t know what I’m hoping for. Maybe a notable sensitivity in tests, but not a complete intolerance, giving me the the ability to indulge in very small amounts and leading to a breakthrough turnaround that changes my life. Yeah, that would rock.

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Today, I woke up feeling like I had been a sidekick character in an action movie. Everything hurt. As though I’d been running, dodging random rubble, ducking during explosions and gunfire, hiding in an odd crouched position, hanging from ledges 10 stories up…

How do you explain suddenly getting hit by pain one day but feeling only slightly achy but relatively fine the day before ?

How can you cope with needing more than 12 hours of sleep a day because those 12 hours are so interrupted and light?

How can you get anything done if you have a full-blown migraine 4-7 days a week?

How can you work to strengthen muscle if pushing just a little too far for that particular day means major setbacks?

How can you have a daily or weekly routine and plan things around this, or have anyone depend on you?

I want to be a tutor that can be relied upon, which means I’ll have to suck it up and push through a migraine for 2 hrs a day, and even 3 or 4 hrs some days.

I want to be a wife or relative you can count on, but I can’t promise to be able to do a necessary task “tomorrow” or be up to an outing or get-together on a set date.

But the more frustrated or stressed-out I get, worrying about being “up to” this or that, the worse I feel…

Basically, I’m sick and tired of being sick and tired.

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I know it seems like a silly little thing, but I am absolutely thrilled that my husband has made some new friends! Last weekend, I was unhappy that he left the house after freeing up my car to go prep for Sunday’s Magic tourney in Boston, and less happy when he called to say that he wouldn’t be home until 1am. However, when he got home and explained that he’d met some guys and went to one guy’s house and hung out there, I was thrilled!

This week, he’s stayed in contact with them through Magic websites and is hanging out most of tomorrow at his friend’s house to test Magic decks and watch the US vs. Canada gold medal hockey game. I’ll miss him, but I’m so, so happy that he found intelligent people with similar interest that he can spend time with and that he is feeling less isolated.

When it comes right down to it, Peter is more than my husband, he’s my best friend and I want him to be happy and content. I knew I could not do that on my own, but I can give him the freedom to spend time with friends.

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Equality in a marriage can be difficult to achieve. When children are part of the equation, it’s much easier to set aside the generally selfish desire for procrastination and good-enough for the greater good. However, when children are not part of the equation, both parties avoid confrontation like an overdue-but-still-acceptable-within-the-next-week term paper, and one party has fibromyalgia, it can be much more difficult.

For years, my husband and I have found ways to avoid sucking it up and doing chores that we didn’t feel a pressing need for, like dusting or cleaning the toilet. It can also be very difficult to accept the onus of responsibility for certain chores, since it tends to become Your Job if you do it more than once.

In January 2007, I had my first major, super-duper flare of  fibromyalgia and Peter took up the slack (or, rather, all the chores) while I wore myself out commuting for an hour or two each day and teaching & planning for 10 more hours. Three years later, I go on leave, unable to work due to my fibromyalgia and migraines, but slowly strengthening and rebuilding my body and, as a part of that, taking my life and home back. Our living room is liveable and mostly clutter-free. I have sorted through all the mail from the past 9 months in the kitchen. We cleaned our bedroom, I have cleaned bathrooms, I am organizing “my” room, and I have done many, many, many loads of laundry. In addition, whenever possible, I do all the grocery shopping and errands. So, basically, I do 3 gym visits and 2 home workouts each week and do an errand or chore each day.

Unfortunately, the snow storm has done a great deal to mess up my life. I know, I know, that sounds very dramatic, but I have done yoga nearly every weekday with a DVD (”Healing Yoga for Aches and Pains”), had migraines nearly every day, and gained 4 lbs. To make this worse, although Peter was snowed-in with me most of last week, he spent two hours unburying his car on Tuesday, helped me with cleaning the bedroom Thursday, went to the supermarket with me for one and a half trips (Tuesday and Friday), and went off to play Magic with his friends on Friday evening and all day Sunday (he worked Saturday). He left the dishwasher unloaded many, many times (as though testing me to see if I will take care of it). I was forbidden from trying to unbury my car and Peter did not touch it after his car was free. His newest reason (as of yesterday) was that he wants to use his own shovel, not borrow one (so I searched online, discovered Lowes, Sears, Home Depot, and Target were all out, and ordered one on Amazon to get here by Friday). Monday, I borrowed Peter’s car, did 25 minutes (2.5 miles) on the recumbent elliptical cardio machine at the gym, got the now-crunchy oil and 3 cracking belts changed on Peter’s car, stopped off at Target and picked up some essentials (unfortunately, they refilled the wrong Rx), filled the tank up with gas, came home to unpack and eat lunch, then injured my neck and started a slow leak on Peter’s car trying to get out of his spot (the last burst of snow, he just backed over, but I didn’t enter the spot straight, so…), went to the doctor, worked myself up to talking to Peter about him giving me freedom to use my car or allow me to find and pay someone to dig me out, and then picked up Peter.

By the time Peter came out and got behind the wheel, he had little air in his passenger-side rear tire. After much drama, we were towed and it was patched, it was obvious I didn’t drive on it while it was flat (else it would have been ruined), but I went from feeling empowered to having to apologize over and over for doing nothing but try to work with what I was given (and saving his car from near-engine-failure due to having less than 50% of its required oil and that which was there was not liquid, but when I told him that during the day, he didn’t see why I was hassling him). I refused to drive his car since then and mine is still behind a 4 ft-high, 2-ft-deep wall of snow. This means I didn’t do the Aqua Aerobics I was so looking forward to since the last time I did it, 2 weeks ago, and I didn’t get to visit a church for Ash Wednesday and get a dirty forehead. I am in desperate need for Rx from Target and we need groceries and I should go to my semi-personal training…

But I don’t want to drive his car. The roads are bad enough without the pressure I feel under to keep his car pristine and, although I want groceries, a part of me feels resentful and frustrated by my limitations, the set-back, and the loss of freedom and feeling safe in my car. So maybe I’m projecting, but I also know that Peter didn’t care enough to make himself uncomfortable in order to give me freedom in a timely fashion. I understand not going out for Valentine’s Day, and not getting a card or flowers… I understand receiving just a good time together for our anniversary. Money’s tight, we’ve been spending plenty of time together… But… Well, sex isn’t the only way you can show affection, and I feel like he’s not trying. (As for that, I’ve been trying to send out signals, but -based on his responses during my impending and then very very short period- it appears that he is only interested if intercourse is possible.) So what was I hoping for? He could have done some of the unsanitary laundry (Stewie was using old laundry as a litterbox). He could have done a little to make my car easier to access, if not drive. He could have shoveled behind and around where he parks, so it’s less tricky. He could have given me a foot massage or given me time to mess with my RockBand avatar and practice before we started playing together. I had a card for him (a general I-Love-You, not specifically V-Day), but I never bothered to fill it out when I saw his attitude Saturday night and Sunday morning.

I know my being home puts additional pressure on Peter to stay employed. However, I continue to receive a paycheck, and I have a very specific set of plans for the future in order to make money and receive disability benefits if possible. Maybe he can help me do the laundry, or clean the area around the kitchen sink, or give me some cash (I have none right now) so I can either pay someone to dig out my car or get a taxi ride. Or maybe he can call the psych group and have them give him an appointment for individual counselling so he might start to be content.

I know that what I really want is to ***POOF*** get my body back to a reasonable weight (sub-140) and have the physical ability to work out the way I want to. I want to teach and then come home and do very little in order to make the house gorgeous and then sit back in my organized, gorgeous, comfy room. I want to be able to enjoy my husband and have him enjoy me. I want to be able to get pregnant and enjoy that pregnancy and then that baby and then, a year or two later, get pregnant again. I want a family and a life. But between migraines, fibro pain, and transport issues, I’m currently living the life of a shut-in (but without the perks of the occasional visitor). 

But right now, just asking for a balance of household responsibilities, and the occasional ”Thank you, I know X was a pain in the butt, so I really appreciate you taking the time and energy to do it,”  is what I need to do…

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Since 2002, A Math Teacher was who I was, and any other applicable definition was secondary, if not imaginary. Since graduating college, the whole of my energies was focused on shaping minds, giving students tools for life, changing lives hopefully for the better. But in early December, my career was temporarily excised from my life, so that I could focus on “me” and get my Self in shape, so I could return better, stronger, faster… but I discovered that I had worked hard to ignore that Self. Who I was in Real Life had atrophied and I had to rebuild it. I had the technology. And I found the willpower. Unfortunately, I could not procure bionic parts. But I’m strengthening what I can, and I am reminding myself of all those subdefinitions:

I am:

  • a full-fledged adult
  • a daughter, sister, aunt, and not-too-in-law
  • a wife who is learning to be a partner
  • a cat-mommy of two Siamese, one of whom is “on the spectrum” (kitty version)
  • a homeowner and neighbor
  • a person who has to solve the puzzle
  • a perfectionist who uses micro-planning and procrastination to disguise insecurity over not being perfect
  • a person with very defined morals and personal rules
  • a person who rarely judges others and finds them lacking
  • a naive fool who, regardless of experience, is constantly surprised by others’ rule-breaking
  • an American that, nevertheless, isn’t from around here (no matter where ”here” is), and never was
  • a regular person (my dream since childhood) who has had the luxury of extraordinary experiences
  • a psychiatric patient who took her life back and will accept the glitches that come my way as a result
  • a person who lives with fibromyalgia and its ups, its downs, and its limitations
  • a woman resculpting her curves to find her body once again (there was a reason I didn’t diet before my wedding: I wanted to look the way I looked 4 years later and 4 years earlier, which I did and I will again)
  • a musician rediscovering her instruments and her love for music in all its forms (well, most of them)
  • a collector of stories and a story-teller
  • a student who will never learn enough
  • a math/science geek
  • a traveller
  • a people-watcher
  • a total klutz
  • a silly, giggly, goof-ball
  • a princess
  • an actor in life’s play
  • an altruist
  • a person who lives for the sake of others when she cannot live for herself
  • a person who does for others before she does for herself
  • an advocate for people with disabilities
  • a person that almost has never felt anger
  • an educator (honestly, I randomly start teaching people about thread count in Bed, Bath, and Beyond when at loose ends like this)

 

I’m sure there are other things people can add to this. But these are the few things I have thought of, mostly in the order they occurred to me, as I sat here over the course of an hour. I miss teaching, and I will either return to the classroom part-time or, more likely, tutor as close to full-time as I reasonably can. But it feels good to be rediscovering who I am and who I can be when I’m not crippled by pain caused by constant overexertion.

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