A lot has changed since the last post, and a lot has stayed the same.

Over the past five weeks, I have been working out with a Personal Trainer who has a lot of experience with helping people with fibromyalgia, or have other issues with chronic pain. I have more energy and strength, sleep more at night, and I have a visibly different shape. I’m also now seeing cheekbone shading, a more defined collar bone, and an omega-shaped ridge below my ribs that is the start of a 6-pack (not that I ever expect one). Unfortunately, my weight has stayed roughly the same (approx. 8 lbs lost) and measurements vary (for example, my butt is more toned, but is raised and rounded, which can raise my hip measurements)… so I’ve gotten a digital caliper and a scale that approximates body fat and water retention through electrical currents. That way, I can monitor improvement in other ways and hopefully not get into a funk.

I started out doing teeny little exercises designed for arthritic nonagenarians, including sitting on a stability ball and 15 minutes on a recumbent elliptical machine on least resistance, but each time we met we ramped it up. Two weeks ago, we hesitantly tried 8 reps on each of a few arm machines. Now, I warm up with 30 minutes on the recumbent elliptical at 150% the original pace. Then, I do a circuit of nautilus-style machines for arms and legs, 2 sets of 12 reps each, with the first set on a new, higher weight and the second set using only (just over) half the weight to stretch the muscle.  Finally is ball work, both using a stability ball and a 4-lb medicine ball to do crazy stuff like putting my legs on the stability ball (to up the effort) and making a “bridge” with my back, raising myself 10 times from just barely touching the floor, then 10 from half-way, then squeezing my tush 10 times, then removing the ball to make it a standard bridge so I can move my knees apart and back together 10 times. Another favorite, since it works my triceps, neck, and abs, is when I hold the medicine ball above my chest with both hands, and then bring it backwards, behind my head, all while I keep my belly button in and have my legs atop the stability ball (again, to increase the effort and effectiveness). To target the lower abs, I dig into the stability ball with my heels and bring my hips up and knees all the way to my chest, in two sets of 12. Finally, we do some seated stuff on the ball, using the medicine ball to do bicep curls and rotate my torso to target my obliques, and maybe even toss a medicine ball back and forth for a funner version of oblique work, and finally try balancing on the Bosu.

For the past 2½ weeks, I’ve been on the 5-day diet, but I’m switching back to the 7-day diet so that I can continue to lose weight. I think I’ll stay on it through the summer, with the occasional meal “off” (perhaps 1 dinner/week and 1 breakfast+lunch/week) that will allow me to share more with my husband, while I slowly push back my meal schedule or allow me to nix a meal that doesn’t look right or just doesn’t appeal. I need the structure to help me continue to lose weight. But my relationship with food has certainly changed. I’m no longer in search of food when I’m in pain or upset, and I no longer fantasize about meals. I just see it as fuel… the input of my daily biological function… with the rare difference being that I “munch” on grapes and sometimes sweets call to me, although last night was the first time I gave in over the past 8 weeks, and that was only after calculating the amount of energy I’d used and the amount I’d ingested. But I really really want to get closer to a “normal” weight. In a perfect world, 40 lbs more. Ideally, 25 lbs more. But I’ll accept at least doubling the weight loss I’ve had over the past 2 months.

Aside from the physical changes, I’ve also been much more social. I joined a local Catholic church that has an extremely large congregation (1,500 families or so) and have signed up for information on joining various small groups (of which there are many) that do good works, study the bible, or organize events. My husband and I have also socialized together with couples whose male counterparts play Magic with him. First, we ate lunch out, saw Toy Story 3 in IMAX 3D, and then went out to dinner at a Filipino restaurant with a slowly growing group. The following weekend, his friend had a belated housewarming party, and I met an entirely new group of people… although I didn’t feel all that comfortable and had a bad headache (mini-migraine), we stayed for 4 hours. Yesterday, both groups combined (plus many, many more), for a 40th-birthday-bash / Independence Day celebration. We were there for over 7 hours and I had a great deal of fun, meeting many people and getting to know others better. I am very hopeful for a more social future for both myself and my husband, together and separately, which is awesome.

Finally, I am getting more and more people becoming fans of the Facebook page for my tutoring business and I got very serious interest from a mother of a student with a disability who was going to homeschool him and needed a math teacher (5 hours per week!). Even if she does not choose to go with me, I have hope that I will get enough students to get by. I just need to get through the summer, focusing on wellness, family, friends, preparation, and hobbies.

I’ve been feeling moody lately. It’s hard to explain to someone that loves me that I’m not depressed, because they’re too used to my varying levels of depression, but I’m truly not depressed.

I don’t feel hopeless and I don’t feel (completely) helpless.

I just feel frustrated because my progress in everything has slowed as though I’m trying to swim in caramel, and lonely because I have little contact with anyone other than my cats, husband, parents, and siblings (in order of amount of contact).

It will take time before people will want a tutor/advocate again; that’s just how the summer is.

It will take time to get the house the way I want it (because I can’t do much myself and I can’t ask my husband to do much more than help clean or move specified things and even then, it’s rarely on my timetable) and then, once the house is all tidy, it will take time and energy to keep it that way.

It will take time before I’m a weight I find at all acceptable.

It will take time before I can do exercises on my own, without a personal trainer, and even then it will take a while before I build up any normal level of strength or endurance.

It will take time before I’ll even have the option of fostering a dog, or before I meet anyone new.

As my favorite psychiatrist once told me, “Sometimes life just sucks.” So, if it gets you down, that doesn’t mean you’re depressed, it just means you’ve properly evaluated the situation and will just have to endure through the suckitude.

I just watched Pixar’s “Up” for the first time, again (since the 1st time was during my ECT, I remembered little more than sobbing through the beginning montage). It can’t help but make me cry – especially after this most recent flare. Let me explain.

The movie is predicated on this Great Love that lasts from childhood through old age and beyond…

When I first saw it, I probably felt two things (1) love for my husband and the hope that it would be that wonderful, and (2) guilt over having been depressed enough to be hospitalized, which I believe hurt him more than he’ll ever say, especially to me.

I still feel that horrible, gnawing guilt over the fact that I thought he, and my other loved ones, but mostly him, would be better off without me in his life, especially if it was deemed an accident, and that they all now know just how selfish I had been.

However, I now feel a second guilt: we aren’t aging together, despite being approximately the same chronological age. At 29.9, my husband is rather healthy, despite untreated allergies, and in relatively good shape while I, at 30.2, I waiver between being a seemingly competent person and a decrepit nearly-bed-ridden crone.

I’ve seen marriages crumble, or at least become very strained, when the age difference suddenly becomes significant and limiting, or one person becomes more disabled than before… The disabled individual, like me, is often humiliated by how much they can’t do (or can’t let themselves do, due to potential consequences) and feels guilty. The younger or non-disabled partner is taking on more and more responsibilities, feeling more pressure at home and work, their recreation is limited as well, and so he or she can be a bit resentful. This leads to tensions and disagreements and miscommunications, or just resentful trudging-through.

So, this time I saw “Up,” I cried because I don’t know if we can have that kind of loving, lasting partnership when I now behave like I’m more than twice his age. I feel as though my only real hope for having a happy, loving, lasting future with the man I love is losing at least 35 lbs over the next year, getting my business running, and personal-training by someone who’s had experience and success with fibromyalgia patients. It may not be true, but it certainly feels that way.

I’m finally feeling better, though. Last weekend, I was basically in bed both days, and was in increasing pain over the course of the week. However, Friday night I slept over 12 hours and then last night I slept 8 hrs and then had two 1-2 hour naps later on today. With this sleep, my skin no longer hurts and I was able to do some cleaning of the kitchen floor, with Peter’s help. Tomorrow, I have my first training appointment, Tuesday, I have a woman from the dachshund rescue coming to do a home visit before approving or denying my application, and then Wednesday, I have a former-tutee-turned-pre-teaching-college-student helping me get my tutoring room together.

This means I’m praying I can get the table down to the rec room and get the first floor and downstairs a little cleaner by the end of this long weekend, with my husband’s help, and still stay relatively low on the pain-scale. We’ll see how that goes.

I’ve been feeling very frustrated over my fibromyalgia-related limitations. This past week, my arms (or, rather, the shoulder-blades/upper-back region) have been hurting horribly and the muscles have swollen. This weekend (Sat & Sun), I did nothing. Quite literally nothing (aside from using the bathroom, brushing my teeth (electric toothbrush), and feeding myself a limited amount).  I lay in bed listening to The Girl With the Dragon Tattoo yesterday and some Neil Gaiman short stories today, sometimes propping myself up in bed and doing Kakuro (cross-sums) puzzles while I listened.

My husband spent the weekend at a “Magic: The Gathering” Grand Prix tournament just outside D.C., coming home only to sleep a few hours Saturday night and finally crash around 5pm on Sunday. He did very well Saturday (top 220 out of 1930, getting him into the 2nd day’s rounds), but the adrenaline high only lasted enough to get him home. So I haven’t seen much of him or gotten to talk to him.

Talking on the phone has been difficult, as has being on the computer, due to the amount I need to use my arms. So I haven’t been able to spend time chatting with my sister or brothers or niece & nephews or grandmother (well, technically, my husband’s grandmother, but she’s adopted me which is a wonderful warm fuzzy feeling).

I couldn’t clean the kitchen floor so local students can be invited to study here. I couldn’t put books on shelves downstairs to get the tutoring room together. Heck, I couldn’t even put dishes away and could barely refill my water bottle with the Brita. The stuff that’s left over from the renovation needs to be returned to Home Depot and Lowes, but my husband has to put it into my car. And the kitty litter, which I’d thought my husband had changed when we went and got litter on Thursday, had not been changed (and it was disgusting then – I am so, so angry)!

Someone’s going to come do a home visit to see if it’s a suitable foster-dog placement. Right now, I’m not ready to let someone into my home.

I feel let down… My husband said I could count on him to do things for me on Thursday and Friday evenings, but that wasn’t completely true, because he really was only willing to do 30 minutes worth of work, max, and if that involved going out and picking up the litter, well, then the litter would have to be changed later. My husband made it sound like I could depend on him to handle the garbage every week, but he will only take 1 trip out on Thursday morning, so if everything can’t be brought on that trip it’ll have to wait. So, when I came down on Thursday, the master bedroom garbage pail was empty (but still in the kitchen) and the cooler from eDiets and the big black garbage bag were gone, the kitchen garbage was still very very full.

It’s a horrible situation: my husband is extremely vehement that he does NOT want people coming in to help me clean even just once in specific rooms, but he is too busy and needs some down time and therefore hasn’t had time to do much cleaning, like scrub the kitchen floor or counters, or wash windows, or do the dishes last week, or just put the Home Depot stuff in my car (I can tip someone for helping me load and bring it into the store), or even go get his own Pepsi out of my car. I understand his point of view: he wakes up early, works all day, needs some time to decompress, needs some time to have fun, and needs to sleep… He’s tired and may feel put upon by all the things that need doing that I can’t share the burden of. He does something for me every day and still that never seems to be enough, I always seem to have more that I’m asking of him.

But carrying my dinner plate and a water bottle to the living room is painful – I can’t do much of anything and just keep hurting myself when I try. We’re running out of clean clothing, but he hasn’t carried any laundry down and may not always be available to carry it back up. Going to Target to get my prescriptions was difficult because I had to pick up shampoo for my husband (which was very heavy, ridiculously enough, but so was pushing a cart) and I got home in so much pain I was dizzy and nauseous.

I guess this is something we can talk about in counseling tomorrow. But I feel helpless and frustrated because I don’t feel like there’s any non-painful way to deal with the situation. No matter what, I’ll be the jerk of a bad guy. Either my husband throws himself into pitching in (maybe he doesn’t see the urgency of the school year ending, of HSA week being this coming week, of me missing important opportunities by waiting) or I’ll need his consent to get someone to come by and clean the kitchen and basement and windows, and perhaps pay a former student to help me get the tutoring room together. But I kind of hit my breaking point this weekend, forcing myself to do nothing while seeing so much to do…

On a more positive note, my husband did say it’s okay for me to buy some personal training sessions with an Elite Personal Trainer at the Columbia Athletic Club, so that someone can help me strengthen my body and arms without exacerbating the injury. So, at least there’s that.

Approximately four weeks have passed since my last post and so very much is milling around my mind to write about that I am writing this post just to recognize all that I will talk about when I can:

• The bathroom is finished. Finally. It’s beautiful and not completely moved into yet, but being fully used. It was completed Friday night, at 11pm on the 23rd, and we began to use it Sunday evening. I will be fully accustomed to it after everything has been put away for a while… so, in a month or so.

  

  

  

  
  

  

  

  

  
  

  

  

  
  
• The front of our home is no longer a jungle. Perhaps over-pruned, but I can plant at my leisure. It was a gift from my mom.
• L.A. was wonderful. We had really needed to get away from life and enjoy ourselves. I enjoyed connecting with my brother and even got to have a heart-to-heart conversation with him and find out just how very much we both have in common (poor guy). It was also wonderful getting to know Grandma Susie better and meeting Grandpa Bernie and their dog, Patsy, for the first time. Since Grandpa Bernie is extremely hard-of-hearing and is not connected to the internet, I have purchased stationery so that I can correspond with him by letter writing. Seeing my in-laws was also nice, although some comments from my husband’s sister went beyond her usual unthinkingly-self-involved zings into personally-cruel territory and I was very proud of myself for neither physically nor verbally attacking her (or even commenting on it to her). The call-her-on-it-and-get-into-a-hysterical-argument gene comes from both sides of my family on X chromosomes (and appears to only get diluted if a Y chromosome is present), as my little brother pointed out, which made me feel even prouder. Someone must have made her more aware of her need to be a little more sensitive, because she didn’t say anything rude at me after that. Overall, it was a wonderful place to visit, and I wish we could fold the globe into the 4th dimension so I could visit my adoptive grandparents and my baby brother far more often, but I would not want to live in a plastic, prop-filled world.
• I’m trying to get my business of the ground. The website is live and it has a facebook page. I have people saying they will send business my way (including the admissions director of a private school for LD students, a parent of two former students, another parent of a summer student, and the head of a local psych group). I have a now-clean rec room with attached powder room that now has matching “powder room” and “laundry room” signs so those doors can stay closed, a soon-to-be-assembled book shelf and computer desk, a printer stand/filing cabinet, a printer/copier/scanner, a soon-to-be-hooked-up computer and soon-to-be-delivered comfy waiting area furniture. A table upstairs will be brought down for tutoring purposes. The kitchen floor is now clear of boxes and junk and soon the surfaces will be too, so that I can advertise to neighbors a low-cost 3pm-5pm homework help time (to drum up business and make nice with them).
• I’m doing eDiets home-delivery to get rid of a chunk of weight. They guarantee 10 lbs in 5 weeks. In addition, I’ve joined the local gyms and pools, which was a package deal that also gives me more access to community events and activities (to shmooze and make friends). Just spending the past week preparing for the diet has had me lose 1.2 lbs.
• I want a dog. Peter does not. The best reason he has is that my health may one day improve greatly, making FT work possible, which is not conducive to dog-ownership. However, I know a dog would get me walking several times a day, every day, and we could get well or be ill together… I am hoping to foster a senior/adult dachshund. Peter thinks bringing anyone new into the household would be hard on the cats. But me being alone all day and dependent on Peter for amusement (as well as every project that I do, which all seem to involve heavy lifting to some degree) is hard on everyone. Also, doing obedience or agility or just a dog park with the dog would be another way to meet people. Since the summer is a slow time for tutors AND I’m limiting myself to 2 hrs/day of work, and I need an interactive project to keep me from obsessing over buying stuff or food or whatever else I could possibly obsess about, and I’m so incredibly lonely, I think this is the perfect solution.  So, I’m filling out long online paperwork, hoping a good match is out there and that Peter will give in if the house is clean enough and he’s getting enough of what he wants. We’ll talk about it seriously during our couple’s-counseling session Monday (along with the fact that we BOTH HATE that I am so dependent on him to do things that will enable my projects, so I don’t push, but it hurts me when he shows such disinterest in helping with getting my business started or clearing out communal space when I’ve already put a lot of work into it, but he needs some down time and relaxation time because he does work a 40-hr week, which is also why I am okay with him spending so very much time out of the house playing Magic: The Gathering with his friends, even though I am desperate for attention), and he’ll see this sometime before then so it won’t blind-side him.

So, that’s about it. A lot going on, all in a tiny span of time and all making laps around the inside of my tiny, youth-hat-sized skull.