Apparently, fibromyalgia and gluten sensitivity have a lot of similar features, according to Deirdre Rawlings, writing for FOODS FOR FIBROMYALGIA.

Physical symptoms associated with gluten intolerance and celiac disease include the following:

• Abdominal cramping / bloating
• Abdominal distention
• Appetite increased (to the point of craving)
• Back pain
• Constipation
• Dehydration
• Decreased ability to clot blood
• Diarrhea
• Dry skin
• Edema
• Electrolyte depletion
• Energy loss
• Fatigue
• Gas / flatulence
• Mouth sores or cracks in the corners
• Muscle cramping (especially in the hands and legs)
• Night blindness
• Weakness and lethargy

Emotional states associated with gluten intolerance and celiac disease are:

• Brain fog
• Depression
• Difficulty concentrating
• Disinterested in normal activities
• Irritable
• Mood changes

How many of these sound like a person with fibromyalgia, depression, mild anxiety, and irritable bowel? Exactly. How about if I just list the symptoms I don’t have?

• _____?

Yeah, I’ve got it all. And my weekend (Friday-Sunday) was very, very gluten rich and surprisingly increasingly painful. So I might have a sensitivity, if not an allergy (I also sometimes break out in unexplained rashes, which I currently have), and I ought to ask my doctor to do tests to determine whether this is possible. Until then, I should eat a low-carb diet.

But gluten is sooooo yummy. My favorite foods are ice cream, bread, chocolate, and pasta.

So I could change my diet and possibly turn everything around (and also lose a lot of weight without my favorite foods to tempt me) but lose the comfort of those favorite foods except on rare occasion.

Or I could go on as if this weren’t a possibility.

Yeah, yeah, I know. I made an appointment for next Wednesday (3/10) with my rheumatologist and I will definitely be bringing this up.

Luckily, my “adoptive” grandmother (my husband’s maternal grandmother)’s husband has gluten intolerance and he eats a gluten-free diet, so she could have some great suggestions, and there are many cookbooks and diet books out there.

I don’t know what I’m hoping for. Maybe a notable sensitivity in tests, but not a complete intolerance, giving me the the ability to indulge in very small amounts and leading to a breakthrough turnaround that changes my life. Yeah, that would rock.

Today, I woke up feeling like I had been a sidekick character in an action movie. Everything hurt. As though I’d been running, dodging random rubble, ducking during explosions and gunfire, hiding in an odd crouched position, hanging from ledges 10 stories up…

How do you explain suddenly getting hit by pain one day but feeling only slightly achy but relatively fine the day before ?

How can you cope with needing more than 12 hours of sleep a day because those 12 hours are so interrupted and light?

How can you get anything done if you have a full-blown migraine 4-7 days a week?

How can you work to strengthen muscle if pushing just a little too far for that particular day means major setbacks?

How can you have a daily or weekly routine and plan things around this, or have anyone depend on you?

I want to be a tutor that can be relied upon, which means I’ll have to suck it up and push through a migraine for 2 hrs a day, and even 3 or 4 hrs some days.

I want to be a wife or relative you can count on, but I can’t promise to be able to do a necessary task “tomorrow” or be up to an outing or get-together on a set date.

But the more frustrated or stressed-out I get, worrying about being “up to” this or that, the worse I feel…

Basically, I’m sick and tired of being sick and tired.

On Friday, I visited the school I’m currently on leave from, met with the principal, visited the math department, and met my new long-term-sub.

My principal is very understanding but told me that he felt he had to put me on the “First Year’s I Don’t Intend to Keep” list, due to my significant absences. However, he will keep me on this year as long as the sick leave bank pays for my being out (so I need to be reapproved every 20 school days, for up to 100) and  if I do return and perform exceptionally well, that may change. I was very happy he was that honest. Regardless, he also does not anticipate a part-time position being available next year, so I will probably be looking for another position internally and externally for next school year.

The principal also gave me “my” second semester schedule, which includes only 1 co-taught class and added a section of Personal Finance (which is extremely well planned-out, so I just have to make copies and deliver the material). Seeing my classroom, seeing coworkers, and meeting my newest long-term sub (the last sub got a full-time full-benefits position elsewhere so he started with the semester this past week). Since the chemistry teacher’s  back from maternity-leave, her sub was given to my classes and they seem to be in good hands.

The principal and my department head were both extremely clear about the one essential thing that decides my date of return, be it March 1st (half-way through 3rd quarter, with Spring Break at the end of the month as a nice breather) or mid-April (the start of 4th quarter): I must be able to have 100% attendance. Any short-cuts that can minimize my stress are okay, but I must grade things on-time, maintain communication with parents, follow-through, and have a strong classroom presence.

That gave me a lot to think about. Afterwards, rather than going to the gym as planned, I went to Bed, Bath, and Beyond and Target and shopped for 4 hours. Then I finished cleaning the Laundry Room floor free of sticky detergent and carried in and down a 6-foot folding table, garbage can, and 3 laundry bins, successfully creating a useable and comfortable laundry center. Saturday, I was FAR less achy than expected.

After having slept 12 hours last night, I tested my auditory strength. In other words, I turned on the dishwasher and hung out in the living room. Unfortunately, despite all the sleep I had had and all the progress I had otherwise made, I still went into auditory overload in 20 minutes and went upstairs and turned on my iPod and lay in bed. Four hours later, I woke up to Peter calling to say he’d be home from his Magic prerelease event shortly. I still have a headache and am feeling like my ears hurt. After that, I’m losing hope that I can have the tools I need to return to teaching 30 social teenagers even by April.

Before I return, I’ll have to:

1. work on CBT to minimize auditory overloading (in addition to my other CBT goals),
2. put myself in positions in which I’ll have to cope with uncomfortable, changing sounds for long periods of time, and
3. spend a week or two transitioning in as a last-chance test.

I miss teaching so much it hurts, like an ulceration of my soul. I’m not even tutoring right now, which I did while I was working on curriculum in a cubicle last school year. I’m back to being a student in my dreams, now, and am having nightmares almost every time I sleep about can’t-remember-what-classes-I-have-when and behind-on-my-work. 

So I’m going to email my psychologist (and myself) my CBT goals for the next month-plus so I can return to teaching, which are:

• Be in touch with my body’s aches and pains
• Find a way to avoid channeling frustration/stress/anger into my body
• Purposefully tune out body pain and not transmit it into emotions
• Believe that, most of the time, my “Good Enough” is spectacular and perfection is to be avoided
• Minimize auditory overloading or desensitize myself in some way

I will also apply to internal openings, and get my resume together for external openings. The Sick-Leave-Bank application for the month of February is in the mail. In addition, I’m going to go to the gym at least 4 days this week.

This week, I’m also going to work on my room to the point that the floor can be walked on, the table can be removed, and the desk is clear. I will also be organizing/clearing the vanity in the master bathroom.

And, yes, I’ll still have time to rheuminate over how much I miss being an educator. I always do.

Well, there are three pains keeping me awake right now, yet again.

Number 3: I got my first cavities in my last teeth. In other words, my wisdom teeth are so far back in my mouth that it can be painful to brush them and I wound up with a cavity in two of them (upper right and lower left). I’ve never had a cavity before, so I’m scared, even though they say it’s no big deal and just small surface cavities… I know fillings crack, fall out, the tooth can rot behind the filling and it may need to be redrilled, and I know I’ll continue to have problems with my wisdom teeth because they’re tiny, craggy, and really really far back. But the dentist refuses to pull them as requested and instead is filling them. Ugh.

Number 2: Money. I just spent $5000 between my dentist, old bills from my hospitalization (they sent 12 bills for different days, but the same amount, as well as 8 additional bills and I misunderstood and only paid 1), and car insurance. Our master bath needs to be fixed. We need to keep eating and living in our home and doctors and meds keep costing money. I’m trying not to worry – money from my grandmother will cover that $5000 – but… well, I’m trying not to worry.

Number 1: Physical Pain. Yet again, I can’t sleep because I’m in too much pain. Heat is too overwhelming for the upper back and vicodin wore off. I think it’ll be 1 more vicodin and a few lidocaine patches so I can go back to sleep. Tomorrow, I may just stretch at home and get what sleep I can and wake at noon for my various appointments. I worry that I’ll have to clean up the guest room enough so that I can use it on days when it hurts to think that my motions are limited or I might get any physical pressure on any body part due to pillows, cats, or a stray, lovingly cuddly limb. <sigh>

This is really screwing with my attempts to achieve better sleep hygiene.

Luckily, I’m exhausted and nearly ready to apply that lidocaine, take a vicodin, and curl into bed with my hubby and kitties.

My doctors all suggest exercise as a necessary part of fibromyalgia pain relief. A good article to read regarding fibromyalgia and exercise is from Web MD. Basically, all studies suggest that lack of exercise leads to more pain and degenerated muscles. The goal is low-impact, low-stress exercise.

My family is oddly insisting that I sit and do NOTHING, which is also what my body keeps asking me to do. My older brother’s wife had Chronic Fatigue Syndrome. Later, she developed Fibromyalgia as well. The pain she had due to muscle degeneration was off the charts. Also, it took something like 10 years for her to get better, and I am not willing to wait that long. So my goal is to not have that happen. Losing weight and improving muscle strength and flexibility will all lessen my pain. If nothing else, it will also make me more in tune with my body.

So I have been working on the Wii for at least 15 minutes each day, unless I do significant exercise that day (a big outing with a lot of walking, such as grocery shopping, would count). But I’m finding Yoga on the Wii to be less than relaxing, regardless of the program. However, tomorrow I will try the regular exercises from Your Shape, and that may be better. Regardless, Wii will be my fitness backup. My primary fitness source will be a local program that gives residents of my town a 60-day membership, complete with two 30-minute personal training sessions each week, freedom to sign up for any of their classes (such as beginner’s yoga, water aerobics) and use their facilities (pools, hot water therapy, fitness equipment, etc.) at any time. I’m hoping to do yoga and water aerobics on the two days that I’m not with a personal trainer, and then I will do Wii’s Your Shape or Wii Fit Plus for 15-30 minutes on the other three days (although any sexual activity may shorten that time, I’ve decided that I will not count it toward my exercise).

I don’t know what will happen in the near or distant future if I’m let go from my job, but I do know that this will help my situation no matter what, and hopefully I can use it in conjunction with CBT to improve my stress and pain management skills, and who can beat such personalized treatment for $60!? As you may know by now, I’m a planner, so at least this is one part of my life that I can control and will get me out of bed and out of the house in the morning.